Patient groups typically form around specific disease areas with an aim of advocating for improved treatments and therapies for patients who fall into those categories—and they’re feeling the ...

Venous thromboembolism (VTE) can be isolating. If you don’t know where to turn after suffering a blood clot, these social networks can help. “A support system is crucial to help those who experience a ...

We welcome new members to our support group. Ask about online participation options if you can't attend in person. Let us know if you're interested. We can give you the timings and discuss costs and ...

Distress and isolation frequently affect individuals with cancer and oncology care providers. Both oncology care teams and patient communities play a crucial role in offering support during ...

SRF (SYNGAP1), RSRT (Rett), CACNA1A, STXBP1, Loulou (CDKL5), & KCNQ2 Cure (KCNQ2) collaborate to support Dr. Devinsky’s research for clinical trial readiness. Co-funded by multiple organizations, this ...

Between 2021-2024, Joel Lexchin received payments for writing a brief on the role of promotion in generating prescriptions for a legal firm, for being on a panel about pharmacare and for co-writing an ...

Patient organisations and charities are at risk of aligning their interests with their corporate funders even when this doesn't benefit their members, according to a new study led by the University of ...

Four years ago, Barbara LaCoste began seeing blurry spots in her central line of vision. During an eye exam at the John A. Moran Eye Center, the 78-year-old received a diagnosis that was all too ...

Despite falling business interest in environmental, social and governance (ESG) policies and outright opposition to such sustainability and ethics commitments in the U.S., company ESG practices still ...